Social Technologies

Social Media and Information Technologies for Human Interaction and Communication by @bacigalupe

Why Time Magazine Put A Woman On The Cover Of Its Issue Complaining About Millennials

See on Scoop.itCollaborative Consultation

There are many problems with Joel Stein’s cover story about Millennials—people born between 1980 and 2000.

See on thinkprogress.org

Filed under: technology

Twitter for the engaged patient: A curated stream of new evidence

See on Scoop.itSocial Media and Healthcare Evaluation

Every weekday, I tweet a carefully curated stream of new evidence, analysis and commentary that covers all the health we might need to know about.

bacigalupe‘s insight:

Here’s why I tweet what I tweet:

It has never been more important for us to be well-informed about so many aspects of health care – not just our complaint of the moment. Otherwise, when we are passive recipients of care, we risk being on the receiving end of medical errors, receiving suboptimal care or simply not knowing how we can best help ourselves. I aim to tweet things we need to know.Evidence has never been more important. Especially considering revelations that much of the care we receive may not be consistent with evidence of what works. Combined with the rapid pace of new findings, understanding the facts relevant to your situation can be intimidating to patients and health professionals alike. Plus, it’s time consuming for us to sort out quality information from broad assertions and slick advertisements, so I aim to tweet evidence worth noting, with the understanding that next week’s evidence may reverse what we know today.Finding high-quality analysis and commentary that is relevant to the decisions we must make about our health and our care every day is a bear. I know. I wouldn’t be traipsing through 20+ different sites in search of the best pieces if they were located in one place. I aim to tweet links to useful, diverse analyses and findings.Understanding health and health care is not just a matter of digesting new facts. It also includes considering implications of those facts and different perspectives on policies so that the facts have context and meaning. I aim to include articles thattweak easy assumptions, shed light in dark corners and sometimes make me smile.Lastly, it’s funner than heck to do this. I have an insatiable taste for gossip, a fascination with trying to figure out what we really need to know to care for ourselves, a long memory for ineffective-but-nevertheless-repeated health care foibles and an impulse toward snarkiness that occasionally breaks through. Spending a couple of hours each day trawling online for sparkling new findings, blogs, articles and essays that I think you might find interesting is a great way to start the day.

See on www.kevinmd.com

Filed under: technology

The Embedded Designer with @cassiemc

The Embedded Designer with Cassie McDaniel at the Medicine 2012 Boston

Filed under: ehealth,

A course in Public Health Science Communication is born…

See on Scoop.itHealth Disparities

… or at least it’s in labour… and hopefully ready to be live and kicking on Wednesday 5 September when …Continue reading »…

See on publichealth2point0.com

Filed under: technology

Is it possible to learn from health care social media analytics?

See on Scoop.itSocial Media and Healthcare Evaluation

From a guest post by Tom Lee (@tmlfox) and Audun Utengen (@audvin) on Colleen Young’s (@ColleenYoung) blog:

 

‘Symplur (@Symplur) is very excited to join the #hcsmca discussion this week! My colleague Tom Lee (@tmlfox) and I, Audun Utengen (@audvin), spend much of our time building and maintaining The Healthcare Hashtag Project, which is heavily used by healthcare tweet chat participants! Hopefully you have found some use of this community project as well. At Symplur we have recently looked closer at the public healthcare discussions on Twitter and questioned if and how we can learn from the wealth of data created by its users.

 

Just a couple of weeks ago we reached a major milestone with over 100 million healthcare tweets archived in our database! We are convinced that there is so much to learn from this data, that providers and patients can benefit from observing and analyzing behavior and discussions on Twitter. Are you?

 

We contributed topics 2a and 2b for this week’s chat, hoping to spur insightful discussions.

 

T2a: From a patient perspective, are analytics like Top Influencers helpful as a discovery tool in their disease experience?

The goal of the Healthcare Hashtag Project is to make the use of Twitter more accessible for providers and the healthcare community as a whole. By lowering the learning curve of Twitter with a database of relevant hashtags to follow, we hope to help new and existing users alike to find the conversations that are of interest and importance.

 

Earlier this year we added a disease section to the Healthcare Hashtag Project. We witnessed that more and more patients are adopting Twitter, especially patients with rare diseases or chronic diseases. It seems to us that they use Twitter to connect with fellow patients and share their experience and knowledge. With that in mind, we have highlighted a list of Top Influencers for each hashtag (and healthcare topic), do you think patients will find such lists useful to find people to follow within their disease or condition? Do influencer lists really work as a discovery tool?

 

See example: #bcsm analytics

http://www.symplur.com/healthcare-hashtags/BCSM/analytics/?hashtag=BCSM&fdate=08-27-2012&shour=18&smin=00&tdate=08-27-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1

 

 

T2b: Do you see an ethical problem with companies mining people’s public tweets for analytical purposes? Where should the line be drawn?

Considering we now have over 100 million healthcare tweets in our database, one might question; what is really inside our database? What does this all mean? Everything we collect is public data. Twitter and tweets are totally public. Still, is there a ethical line to be drawn regarding mining this data?

 

All the analytics we do on our site is aggregation. In the process of attempting to learn from this data, the only option seems to group it all together and run our calculations. Obviously, this removes the individual element from the results, but this may not be the case with other types of analytics. Has the twitter user signed away it’s “privacy rights” at the moment they hit the tweet button, or should organizations doing healthcare social media analytics be restricted to aggregation only?

 

We look forward to a lively discussion with the wonderful #hcsmca community! Thank you for the opportunity.’

See on cyhealthcommunications.wordpress.com

Filed under: technology

Wikisanidad – Eventos (Sanidad y Medios Sociales)

See on Scoop.itSocial Media and Healthcare Evaluation

Incluyendo #CarnavalSalud en la agenda de eventos de #wikisanidad http://t.co/m6tEx5QC Si conoces más inclúyelos !!!

See on wikisanidad.wikispaces.com

Filed under: technology

Opening Up Healthcare Innovations

See on Scoop.itSocial Media and Healthcare Evaluation

One key direction in which healthcare innovation can open up lies in harnessing the innovation potential of patients and their carers. We already know of many examples where patients have been a key source of innovation; in today’s environment the challenge is to find ways of scaling this to help deal with the innovation crisis.

See on esaludsocialmedia.com

Filed under: technology

It’s Time to Re-Think the U.S. Education System

See on Scoop.itCollaborative e-Learning

Today’s kids know they aren’t getting what they need at school.
See on t.co

Filed under: technology

Associations Between Co-playing Video Games and Adolescent Behavioral and Family Outcomes

See on Scoop.itCollaborative e-Learning

This pdf is a research paper. In the abstract we read:

“At the bivariate level, time spent playing video games was associated with several negative
outcomes, including heightened internalizing and aggressive behavior and lowered prosocial behavior.
However, co-playing video games with parents was associated with decreased levels of internalizing and aggressive behaviors, and heightened prosocial behavior for girls only. Co-playing video games was also marginally related to parent–child connectedness for girls, even after controlling for age-inappropriate games played with parents.
Conclusions: This is the first study to show positive associations for co-playing video games between girls and their parents.”

See on www.jahonline.org

Filed under: technology

GHPS_Digital_Innovation_Report: The digital dimension of health care

See on Scoop.itSocial Media and Healthcare Evaluation

Digital initiatives for social impact
The new digital and social media are also benefiting broad-based initiatives that promote
health and wellbeing. Governments, NGOs and foundations are beginning to incorporate
digital technologies into public-health campaigns, using the tools of online advertising such as
targeting and customisation in order to communicate with difficult-to-reach populations and to
fine-tune messages. Campaigns such as the Let’s Move anti-obesity programme are employing
digital and social media across multiple channels, breaking down silos between health and
*All $ in this paper are US DollarsReport of the Digital Innovation in Healthcare Working Group 2012
adjacent fields such as education. Initiatives such as the Stop Stock-outs Campaign, to reduce
shortages of essential medicines in Africa, are using interactive, two-way communication to
drive reform.
While digital and social media have the potential to improve health in multiple areas, this
potential will be realised only if policymakers both remove barriers to faster adoption and
encourage experimentation and development. By focusing on six broad principles, policymakers
can lay the groundwork for a more effective and comprehensive healthcare system:
• Set the direction, and commit to it
Policymakers should design and communicate a vision that signals to investors and innovators
that digital innovation is a priority. The vision must then be supported by targeted investments
– investments that foster innovation and experimentation, develop the underlying infrastructure,
and establish best practices.
• Balance patient confidentiality and information-sharing
The sharing of aggregated, anonymised data will produce great benefits, but will also put
patients’ privacy at risk. A balance is needed, and to achieve it, policymakers should engage
in broader debates on data privacy, including those that go beyond health-specific issues.
Policymakers should establish robust standards and protocols for aggregated health data,
and should clarify the rights to access and use of that data. The starting assumption should
be that every patient’s data will be anonymously included, except where an individual patient
specifically opts out. Legal protections should be put in place to shield individuals from improper
use of de-anonymised heath data. Finally, educational campaigns should be conducted, aimed
at providers and public alike, to raise awareness of the rights, responsibilities, risks and benefits
related to health data.
• Empower patients
Many patients would engage more fully in the managem

See on www.globalhealthpolicyforum.org

Filed under: technology

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